May 2016 - WG-UMA - mailman.kantarainitiative.org

Agenda for UMA telecon 2016-05-19
by Eve Maler 18 May '16

18 May '16

Yes, we finally have another meeting! Please make every effort to attend. http://kantarainitiative.org/confluence/display/uma/UMA+telecon+2016-05-19 Date and Time - *Thu May 19,* 9-10am PT - Voice: Skype: +99051000000481 or US +1-805-309-2350 (international dial-in lines <https://www.turbobridge.com/join.html>), room code 178-2540# - Screen sharing: http://join.me/findthomas - *NOTE:* *IGNORE* the join.me dial-in line shown here in favor of the dial-in info above (Kantara "line C" and the Skype line) - UMA calendar: http://kantarainitiative.org/confluence/display/uma/Calendar Agenda - Roll call - Meeting schedule - Still spotty; when can we manage to keep meetings on the calendar? - Approve minutes of UMA telecon 2016-04-14 <http://kantarainitiative.org/confluence/display/uma/UMA+telecon+2016-04-14> - Past and upcoming events - News from IIW and EIC - Preparing for CIS - Other goings-on - Justin's "multi-party delegation" <https://groups.google.com/forum/#!searchin/kantara-initiative-uma-wg/langui…> change proposals - AOB *Eve Maler*Cell +1 425.345.6756 | Skype: xmlgrrl | Twitter: @xmlgrrl

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Re: [WG-UMA] Privacy policy or privacy notice: what's the difference? | CIO
by John Wunderlich 17 May '16

17 May '16

+1 Robin And your list's order correctly, I think, captures the inverse relationship between operational privacy and privacy theatre. On Thursday, 5 May 2016, Robin Wilton <racingsnake(a)fastmail.fm> wrote: > +1 > > Ian Glazer and I wrote about this in our Gartner days (so the results are > hidden behind the Gartner paywall, regrettably...). > > However, a similar discussion surfaced at the ethical data-handling > workshop I ran last Friday, and we distinguished between the following > layers: > > > - Privacy policy statement ( = privacy notice, as defined here); the > outward facing doc saying what you want customers to hear. > - Privacy policy: the internal statement of what the organisation thinks > it should do > - Business process: the internal statement of what the organisation thinks > it does > - Actual behaviour > > R > > On Thu, May 5, 2016, at 07:23 PM, John Wunderlich wrote: > > Useful reading. I’ve written both privacy policies and those things on web > sites ‘called’ privacy policies. They are infrequently the same thing. This > piece captures the difference reasonably well. > > > http://www.cio.com/article/3063601/privacy/privacy-policies-and-privacy-not… > > > > Sincerely, > John Wunderlich > @PrivacyCDN > > Call: +1 (647) 669-4749 > eMail: john(a)wunderlich.ca > <javascript:_e(%7B%7D,'cvml','john(a)wunderlich.ca');> > > > This email and any files transmitted with it are confidential and intended > solely for the use of the individual or entity to whom they are addressed. > If you have received this email in error please notify the system manager. > This message contains confidential information and is intended only for the > individual named. If you are not the named addressee you should not > disseminate, distribute or copy this e-mail. Please notify the sender > immediately by e-mail if you have received this e-mail by mistake and > delete this e-mail from your system. If you are not the intended recipient > you are notified that disclosing, copying, distributing or taking any > action in reliance on the contents of this information is strictly > prohibited. > *_______________________________________________* > WG-InfoSharing mailing list > WG-InfoSharing(a)kantarainitiative.org > <javascript:_e(%7B%7D,'cvml','WG-InfoSharing(a)kantarainitiative.org');> > http://kantarainitiative.org/mailman/listinfo/wg-infosharing > > Robin Wilton > +44 (0)705 005 2931 > -- John Wunderlich Fat fingered from a mobile device Pleez 4give spelling errurz! -- This email and any files transmitted with it are confidential and intended solely for the use of the individual or entity to whom they are addressed. If you have received this email in error please notify the system manager. This message contains confidential information and is intended only for the individual named. If you are not the named addressee you should not disseminate, distribute or copy this e-mail. Please notify the sender immediately by e-mail if you have received this e-mail by mistake and delete this e-mail from your system. If you are not the intended recipient you are notified that disclosing, copying, distributing or taking any action in reliance on the contents of this information is strictly prohibited.

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Re: [WG-UMA] Privacy policy or privacy notice: what's the difference? | CIO
by John Wunderlich 06 May '16

06 May '16

Robin; Have you looked into how what you are proposing aligns (or not) with the Ruggie rules and the UN Guiding Principles on Business and Human Rights? John Wunderlich, Sent frum a mobile device, Pleez 4give speling erurz _____________________________ From: Robin Wilton <racingsnake(a)fastmail.fm> Sent: Friday, May 6, 2016 7:56 AM Subject: Re: Privacy policy or privacy notice: what's the difference? | CIO To: John Wunderlich <john(a)wunderlich.ca>, Adrian Gropper <agropper(a)healthurl.com> Cc: wg-uma <wg-uma(a)kantarainitiative.org>, Information Sharing Work Group <wg-infosharing(a)kantarainitiative.org> Hi both - This (emboldened, below) is also the reasoning behind the ethical data handling (EDH) work I'm doing in ISOC at the moment. My aim is to increase stakeholders' focus on EDH by providing rationales and practical guidance throughout the product/data lifecycle. Obviously, data subjects ought to like the idea, because it is likely to respect their interests more than the status quo does.It's trickier to build a compelling case for corporates to adopt EDH (for the reason John suggests below) - but I think there are possibilities: - stating ethical principles externally gives customers and potential customers an indication of good faith - which should have a reputational pay-off for the business; - setting ethical principles internally should help foster a culture of ethical behaviour, which is nice and cuddly, but it should also have the consequence of making compliance easier to achieve and demonstrate. That's a hypothesis, but I propose it because I think people behave better when they buy into the reasons for their behaviour... and "because it's in line with our respect for the customer" is a more powerful motivator than "because I have to tick these compliance boxes". (In terms of the layers I described earlier, it builds a stronger link between stated principles and actual behaviour). If the corporate is both respecting the customer and finding compliance easier to achieve, I believe it is more likely to be effectively mitigating privacy risk, too. As I say, making this compelling for corporates is one of the tricky bits: if anyone has other ideas/suggestions about building the business case (or building the case for non-commercial data controllers, of course!), please please let me know... I'll be speaking on this at CIS New Orleans, University of Vienna, OIX Rome, EWTI Vienna, etc., and you will get full attribution for any contributions!! (That's naked bribery, I know, but who said I was proud?) ;^) Best wishes,Robin On Thu, May 5, 2016, at 10:55 PM, John Wunderlich wrote:Criticizing corporations for focusing on compliance and managing liability is kinda like critiquing a lion for being a carnivore. I take your point, but the solution involves citizen/customer/patient activism to change the context - like patient privacy rights is doing. But in the meantime, some corporations and some individuals in corporations want to do the right thing, and should be supported. I don't want to Brandon the field just yet. On Thursday, 5 May 2016, Adrian Gropper <agropper(a)healthurl.com> wrote:I find articles like this and most of what IAPP stands for deeply upsetting. Everything is from the perspective of the institution, mostly compliance. There is not a single mention of the subject's perspective, much less sympathy. My guess is that 90% of Privacy Notices are 90% identical to the Staples example. Why isn't anyone calling for privacy notices to be standardized - with exceptions for the 10% that might be actually interesting or differentiating? Because of IAPP and the entire mini-industry that lives off surveillance capitalism. Shameful. Adrian On Thursday, May 5, 2016, John Wunderlich <FastMail WARNING: URL text contains a possible JavaScript attack on your machine. URL disabled. Original URL='javascript:_e(%7B%7D,'cvml','john(a)wunderlich.ca');'. For more information on phishing click here.> wrote:+1 Robin And your list's order correctly, I think, captures the inverse relationship between operational privacy and privacy theatre. On Thursday, 5 May 2016, Robin Wilton <racingsnake(a)fastmail.fm> wrote:+1 Ian Glazer and I wrote about this in our Gartner days (so the results are hidden behind the Gartner paywall, regrettably...). However, a similar discussion surfaced at the ethical data-handling workshop I ran last Friday, and we distinguished between the following layers: - Privacy policy statement ( = privacy notice, as defined here); the outward facing doc saying what you want customers to hear.- Privacy policy: the internal statement of what the organisation thinks it should do- Business process: the internal statement of what the organisation thinks it does- Actual behaviour RRobin Wilton+44 (0)705 005 2931 -- This email and any files transmitted with it are confidential and intended solely for the use of the individual or entity to whom they are addressed. If you have received this email in error please notify the system manager. This message contains confidential information and is intended only for the individual named. If you are not the named addressee you should not disseminate, distribute or copy this e-mail. Please notify the sender immediately by e-mail if you have received this e-mail by mistake and delete this e-mail from your system. If you are not the intended recipient you are notified that disclosing, copying, distributing or taking any action in reliance on the contents of this information is strictly prohibited.

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10 Sovereign Technology Components
by Adrian Gropper 05 May '16

05 May '16

https://docs.google.com/document/d/1q5BGr4THTPai-PKJLZ0_N1ZTsKDzBD795XPicCQ… is a short, editable document that attempts to define a sovereign technology based on work at this IIW. Blockchain, UMA, and FIDO can all be combined and understood as enablers of totally decentralized systems with no privacy policies or institutional contracts required. This paper that Doc pointed out http://papers.ssrn.com/sol3/papers.cfm?abstract_id=2744751 introduces the case for sovereign technology today: > "The basic economics of blockchain can be thought of the case for why > decentralized solutions to ledgers, now technically possible, are likely to > become increasingly cost effective compared to centralized solutions as > they run down three exponential cost curves: (1) Moore’s law (cost of > processing digital information, i.e. speed, halves every 18 months); (2) Kryder’s > Law (cost of storing digital information, i.e. memory, halves every 12 > months); and (3) Nielsen’s Law (cost of shipping digital information, > i.e. bandwidth, halves every 24 months) (Wiles 2015)" > All of us as individuals can now own sovereign technology if we want to. The only question is how much of our budget should be dedicated to sovereign technology. My interest is primarily around decision support for health, but this could just as well include VRM and advertising in general. A small investment in sovereign technology allows one to leverage a huge market impact on decision support services. A sovereign technology perspective helps inform our work on standards as well as privacy. It offers a new perspective on services that ask for prior consent as an alternative to respect for our technology as our agent in their data use and sharing transactions. Accounting for the 10 sovereign technology components enables us to apportion our technology budget appropriately and it makes it easier to interpret the privacy policies of the services we choose (or are forced) to grant access to our personal data. Please help improve this paper and suggest where we go from here. Adrian -- Adrian Gropper MD PROTECT YOUR FUTURE - RESTORE Health Privacy! HELP us fight for the right to control personal health data. DONATE: http://patientprivacyrights.org/donate-2/

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Privacy policy or privacy notice: what's the difference? | CIO
by John Wunderlich 05 May '16

05 May '16

Useful reading. I’ve written both privacy policies and those things on web sites ‘called’ privacy policies. They are infrequently the same thing. This piece captures the difference reasonably well. http://www.cio.com/article/3063601/privacy/privacy-policies-and-privacy-not… Sincerely, John Wunderlich @PrivacyCDN Call: +1 (647) 669-4749 eMail: john(a)wunderlich.ca -- This email and any files transmitted with it are confidential and intended solely for the use of the individual or entity to whom they are addressed. If you have received this email in error please notify the system manager. This message contains confidential information and is intended only for the individual named. If you are not the named addressee you should not disseminate, distribute or copy this e-mail. Please notify the sender immediately by e-mail if you have received this e-mail by mistake and delete this e-mail from your system. If you are not the intended recipient you are notified that disclosing, copying, distributing or taking any action in reliance on the contents of this information is strictly prohibited.

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DG on Block Chain
by Mark Lizar - OCG 04 May '16

04 May '16

HI, A couple of quick items. 1. The DG is on the Agenda today in 15 min.. are one of you going to be present to talk about it? 2. would it be in the DG scope to include smart consent (in relation to block chain) as well as contract? Best, Mark

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