Re: [WG-UMA] Exemplary real world use case for UMA

Sure. Here's an example of other matters: http://anildash.com/2017/03/tech-and-the-fake-market-tactic.html Adrian On Tue, Aug 1, 2017 at 2:49 PM, Eve Maler wrote:

Below.

*Eve Maler*Cell +1 425.345.6756 <(425)%20345-6756> | Skype: xmlgrrl | Twitter: @xmlgrrl

On Tue, Aug 1, 2017 at 11:20 AM, Adrian Gropper wrote:

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There are vastly more kids with behavioral health issues than with congenital heart defects. Who will be the custodian for those?

Whoever by law and/or contract has those rights?

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Can the parent completely delete these records before the child reaches the age of consent?

Only if resource ownership includes "deletion scope"? (So maybe not, if that's not appropriate for the RS to offer?)

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Can the child delete them after he reaches the age of consent?

Only if (presuming that full resource ownership rights have been given to them by this time) resource ownership comes with "deletion scope"?

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This is all about UMA, but it really only works if the "custodian" is the parent or child themselves or it's a trustee with a strict fiduciary relationship to the child. Lawyers and doctors can be trustees. I'm not sure Canada or the US gov can be in this trustee role.

To answer this -- and the other questions -- is to go beyond the technical layer to other matters. Hence all the question marks.

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Adrian

On Tue, Aug 1, 2017 at 2:07 PM, Eve Maler wrote:

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And for reducing friction in supplying (and potentially outsourcing) authorization services.

*Eve Maler*Cell +1 425.345.6756 <(425)%20345-6756> | Skype: xmlgrrl | Twitter: @xmlgrrl

On Tue, Aug 1, 2017 at 8:09 AM, John Wunderlich wrote:

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The advocates in the linked article make a good case why the health records of children with congenital health issues that now survive much longer should be kept for life. But this puts burden on the health information custodians with respect to staying in touch with the adult, respecting their consent directives, and respecting regulatory requirements.

How much better would be a patient managed/controlled/owned resource server...?

​ https://www.thestar.com/news/queenspark/2017/07/28/medical-r ecords-of-sick-kids-should-be-kept-for-life-group-urges.html

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Adrian Gropper MD

PROTECT YOUR FUTURE - RESTORE Health Privacy! HELP us fight for the right to control personal health data.

-- Adrian Gropper MD PROTECT YOUR FUTURE - RESTORE Health Privacy! HELP us fight for the right to control personal health data.