The advocates in the linked article make a good case why the health records of children with congenital health issues that now survive much longer should be kept for life. But this puts burden on the health information custodians with respect to staying in touch with the adult, respecting their consent directives, and respecting regulatory requirements. How much better would be a patient managed/controlled/owned resource server...? https://www.thestar.com/news/queenspark/2017/07/28/medical-records-of-sick-k... -- This email and any files transmitted with it are confidential and intended solely for the use of the individual or entity to whom they are addressed. If you have received this email in error please notify the system manager. This message contains confidential information and is intended only for the individual named. If you are not the named addressee you should not disseminate, distribute or copy this e-mail. Please notify the sender immediately by e-mail if you have received this e-mail by mistake and delete this e-mail from your system. If you are not the intended recipient you are notified that disclosing, copying, distributing or taking any action in reliance on the contents of this information is strictly prohibited.