There are vastly more kids with behavioral health issues than with congenital heart defects. Who will be the custodian for those? Can the parent completely delete these records before the child reaches the age of consent? Can the child delete them after he reaches the age of consent?

This is all about UMA, but it really only works if the "custodian" is the parent or child themselves or it's a trustee with a strict fiduciary relationship to the child. Lawyers and doctors can be trustees. I'm not sure Canada or the US gov can be in this trustee role. 

Adrian

On Tue, Aug 1, 2017 at 2:07 PM, Eve Maler <eve@xmlgrrl.com> wrote:
And for reducing friction in supplying (and potentially outsourcing) authorization services.


Eve Maler
Cell +1 425.345.6756 | Skype: xmlgrrl | Twitter: @xmlgrrl


On Tue, Aug 1, 2017 at 8:09 AM, John Wunderlich <john@wunderlich.ca> wrote:
The advocates in the linked article make a good case why the health records of children with congenital health issues that now survive much longer should be kept for life. But this puts burden on the health information custodians with respect to staying in touch with the adult, respecting their consent directives, and respecting regulatory requirements.

How much better would be a patient managed/controlled/owned resource server...?



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