UMA is perfect for healthcare.

Preamble:

Healthcare has just discovered REST and OAuth and is struggling with major unsolved patient identity and privacy problems that UMA can solve. The UMA opportunity is global. Three kinds of health records access have been tried in the developed world (UK has a centralized government-controlled system, AU has a centralized patient-controlled system, and US has a mess of private silos and state exchanges with little or no patient control). It can be argued that all three of these approaches is failing for privacy and scalability reasons.

History:

For over a year, I've been working with a geek physician (Michael Chen) that has an open-source electronic patient record (EHR) to convert it into an UMA-based and compatible alternative to the three incumbent models above. The idea is to have each patient own and control the technology that hosts their individual health record and use UMA and OIDC to connect her personal EHR server to institutional systems, licensed clinicians, and family caregivers. Michael has made a lot of progress is separating his EHR code into a practice copy and a patient copy and integrating MITREid Connect into the separated pieces.

Last week, a number of things came together including the first public presentation of this project that I put up on YouTube, publicized by a very articulate practicing physician http://thehealthcareblog.com/blog/2016/01/23/the-patient-centered-health-record/ , a major publication http://www.nejm.org/doi/full/10.1056/NEJMp1512142 by long-time academic collaborators of mine, and a bunch of behind-the-scenes activity leading to separate testimony in Washington this week by Eve and by me http://bit.ly/APItaskforce .

In healthcare, as opposed to more typical commerce, patients have a "right of access" to our own health data which can be used to drive adoption of UMA by physicians and tech innovators. The major health IT conference in the US is coming up at the end of February and it's a major opportunity to promote UMA.

Need Help:

Michael Chen and I need help with our respective GitHub projects (NOSH and HIE of One) in order to complete the proof of concept while the regulators and geeks are still firming up the healthcare standards and profiles. I am particularly lame and am hoping to get some coding help around HIE of One which I'm building around  Debian/FreedomBox at https://github.com/HIEofOne/PersonalAS/wiki/Milestone-1:-OpenID-Connect-Client As you can see there, the FreedomBox community will also help and help drive adoption. I think Roland's UMA code for Python could do much of this and, because NOSH is using MITREid Connect, the result would be more broadly interesting.

Can any umanitarian help add an UMA AS to FreedomBox?

Thanks,

Adrian


--

Adrian Gropper MD

PROTECT YOUR FUTURE - RESTORE Health Privacy!
HELP us fight for the right to control personal health data.

DONATE: http://patientprivacyrights.org/donate-2/