- DG-BSC - mailman.kantarainitiative.org

Notes from BSC telecon Thursday July 28
by Eve Maler 28 Jul '16

28 Jul '16

http://kantarainitiative.org/confluence/display/BSC/2016-07+%28July+2016%29… Agenda: - Work on Alice Consents to Health Research <http://kantarainitiative.org/confluence/display/BSC/Alice+Consents+to+Healt…> - Report <http://kantarainitiative.org/confluence/display/BSC/Report+from+the+Blockch…> section assignments and review if time Attending: Thomas, Eve, Scott, Ann, Andrew, Mark, Kathleen, Jeff, Don, John *Research use case:* We looked at the use case text and explored the model data sharing consent form, which has been "accordified" in CmA. This is one of the technologies we're explicating and exploring. In Jim's candidate cast of actors, we're missing a likely clinician (dealing with Alice and her treatment for a particular condition) or investigator (looking into, say, an experimental drug), which two roles might be filled by the same person (say, Dr. Whoever). The data might be collected for research generically, or in a different fork of the data flow, it's collected in the course of a specific treatment that Alice is undergoing. Is there a fork as well for aggregation of data and then dissemination to multiple research teams, vs. direct data donation to a specific research effort? Could be both. Our concerns would be that the use case: - Captures requirements for deidentification - Captures the different parties to whom it's being shared - Captures the different intermediaries - Captures data usage requirements and constraints - Captures the ethical considerations for the patient (data subject) but also others sharing part of the same genome - Captures the patient's requirements for comfort around consenting so that they can verify compliance of the other parties more stringently (smart contract implications?) - Captures cross-cutting jurisdictional regime implications of the patient as a stakeholder (rights vs. property) – affects data usage, compliance, etc. - Captures granularity and specificity of consent throughout the consent life cycle (UMA and Consent Receipts implications?) Kathleen has seen ugly lawsuits where, because even deidentified data was unconsented, it had to be destroyed. We're guessing that some of the above list items will become standard use case "Considerations" items, and some will be use-case-specific "Observations" items. Technologies we haven't listed yet include UMA and Consent Receipts; they should be added to the report outline. *Eve Maler*ForgeRock Office of the CTO | VP Innovation & Emerging Technology Cell +1 425.345.6756 | Skype: xmlgrrl | Twitter: @xmlgrrl *ForgeRock Summits and UnSummits* are coming to <http://summits.forgerock.com/> *Sydney, London, and Paris!*

5 10

Agenda for BSC telecon Thursday July 28
by Eve Maler 27 Jul '16

27 Jul '16

http://kantarainitiative.org/confluence/display/BSC/2016-07+%28July+2016%29… We meet *Thursdays* for 30 minutes at 11am PT / 2pm ET / 7pm UK / 8pm CET. We use Kantara Line A (US +1-805-309-2350, Skype +99051000000481, international options <https://www.turbobridge.com/international.html>, web interface <https://panel.turbobridge.com/webcall/>, more info <https://www.turbobridge.com/join.html>, code 4022737) and http://join.me/findthomas for screen sharing. See the DG calendar <http://kantarainitiative.org/confluence/display/BSC/Calendar> for our full meeting schedule. Agenda: - Work on Alice Consents to Health Research <http://kantarainitiative.org/confluence/display/BSC/Alice+Consents+to+Healt…> - Report <http://kantarainitiative.org/confluence/display/BSC/Report+from+the+Blockch…> section assignments and review if time *Eve Maler*ForgeRock Office of the CTO | VP Innovation & Emerging Technology Cell +1 425.345.6756 | Skype: xmlgrrl | Twitter: @xmlgrrl *ForgeRock Summits and UnSummits* are coming to <http://summits.forgerock.com/> *Sydney, London, and Paris!*

1 0

New thoughts for the report: add IAM as a technology
by Eve Maler 26 Jul '16

26 Jul '16

I'm thinking we should add "Identity and access management" as a technology in the report, and then discuss taxonomies a bit within that subsection (and maybe more extensively elsewhere, if they play an extensive role in our recommendations). I have in mind a description of the blockchain technology that differentiates between the (potential) need for identification/authentication/authorization of those who *interact with* it and the use case of putting identity-related information *on* it. (*Jeff S:* If I were to draft V1 of this, would you be willing to review it? I already have some candidate text that's short and hopefully pithy.) And wherever we have a section/subsection that analyzes connections between technologies/techniques, we can perhaps touch on the "self-sovereign identity" solutions that are coming out that use blockchain technology to address user-centric types of identity use cases. If non objections, I can add outline stubs as above so we don't lose the ideas. *Eve Maler*ForgeRock Office of the CTO | VP Innovation & Emerging Technology Cell +1 425.345.6756 | Skype: xmlgrrl | Twitter: @xmlgrrl *ForgeRock Summits and UnSummits* are coming to <http://summits.forgerock.com/> *Sydney, London, and Paris!*

2 1

blockchain is and isn't
by Salvatore D'Agostino 26 Jul '16

26 Jul '16

https://medium.com/@pavelkravchenko/decline-of-blockchain-hype-and-rise-of-a -common-sense-8de5789a794d#.vom3pjey8

2 1

Notes from BSC telecon July 26
by Eve Maler 26 Jul '16

26 Jul '16

http://kantarainitiative.org/confluence/display/BSC/2016-07+%28July+2016%29… Agenda: - Review of BSC DG Report outline <http://kantarainitiative.org/confluence/display/BSC/Report+from+the+Blockch…> - Use case <http://kantarainitiative.org/confluence/display/BSC/Use+Cases?src=contextna…> work Attending: Eve, Matisse, Jeff, Scott, Don, Thomas, Jim, Andrew (from the Kantara LC), John, Colin Lurking *Discussing the outline:* We should ensure that we satisfy the needs of an external audience that shares our purpose too. We could, in part, do this by including a review (John: "environmental scan") of other activities attempting to address some of these issues. The world seems to just be entering the trough of disillusionment. We want to achieve empowerment and the "P2P-ness" in a *functional* sense, even if not in a strictly technical sense. It's a good idea to reference the Kantara vision/mission wording. Jeff suggests: Maybe we shouldn't say "P2P" at all in our goal, because it implies a (technical) technique too strongly. We could illustrate the power imbalance instead by talking about "contracts of adhesion" or simply talk about addressing the power imbalance directly (brute force method!). Eve essays a goal: Solve the use cases, with whatever technologies. This may mean not always using a pure blockchain model if that has certain vulnerabilities, or requires a TTP in the mix, or whatever. We could discuss how blockchain has started to be over-applied to solve problems it perhaps wasn't meant for (the root of the trough-of-disillusionment phenomenon!). >From the chat: Technology cannot solve problems that require management and governance . But technology can provide tools to manage and govern. Jim shares this link as a resource <https://docs.google.com/document/d/1AIuACsbe5B4I438r0vS6dS9jZFZUOBh6uJeGxrw…> for helping with the first use case. Next time: Continue with the same agenda. *Eve Maler*ForgeRock Office of the CTO | VP Innovation & Emerging Technology Cell +1 425.345.6756 | Skype: xmlgrrl | Twitter: @xmlgrrl *ForgeRock Summits and UnSummits* are coming to <http://summits.forgerock.com/> *Sydney, London, and Paris!*

1 0

Agenda for BSC telecon July 26
by Eve Maler 25 Jul '16

25 Jul '16

http://kantarainitiative.org/confluence/display/BSC/2016-07+%28July+2016%29… We meet *Tuesdays* for 30 minutes at 7:30am PT / 10:30am ET / 3:30pm UK / 4:30pm CET. We use Kantara Line A (US +1-805-309-2350, Skype +99051000000481, international options <https://www.turbobridge.com/international.html>, web interface <https://panel.turbobridge.com/webcall/>, more info <https://www.turbobridge.com/join.html>, code 4022737) and http://join.me/findthomas for screen sharing. See the DG calendar <http://kantarainitiative.org/confluence/display/BSC/Calendar> for our full meeting schedule. Agenda: - Review of briefing note outline (to be supplied) - Use case work *Eve Maler*ForgeRock Office of the CTO | VP Innovation & Emerging Technology Cell +1 425.345.6756 | Skype: xmlgrrl | Twitter: @xmlgrrl *ForgeRock Summits and UnSummits* are coming to <http://summits.forgerock.com/> *Sydney, London, and Paris!*

1 1

Notes from BSC telecon July 21
by Eve Maler 21 Jul '16

21 Jul '16

http://kantarainitiative.org/confluence/display/BSC/2016-07+%28July+2016%29… Agenda: - 10 min: Review Tuesday's discussion briefly if we have substantially different people on the call - Rest of the time: Figure out the broad outlines of use case #1 in light of our new understanding Attending: Thomas, Eve, Scott, Don, Marco, Matisse In doing a use case, here are questions we could consider answering: - Who is the party we want to empower or give autonomy to? That would be the "Alice", so to speak. - What is the transaction we are describing? This would be the gerund that goes into the use case name. (Like "consent", e.g.) - What is the domain of the transaction? (Like "health research", e.g.) We need a champion to stand up and take the new use case wiki page further. Is that Jim? John? Both together? Please see the new Alice Consents to Health Research <http://kantarainitiative.org/confluence/display/BSC/Alice+Consents+to+Healt…> use case page for details. For next week: - The briefing note dumping ground to throw eggs at - Use case work *AI:* Thomas: Ask Shannon to tidy up the calendar. *Eve Maler*ForgeRock Office of the CTO | VP Innovation & Emerging Technology Cell +1 425.345.6756 | Skype: xmlgrrl | Twitter: @xmlgrrl *ForgeRock Summits and UnSummits* are coming to <http://summits.forgerock.com/> *Sydney, London, and Paris!*

3 3

Agenda for BSC telecon 2016-07-21 (today!)
by Eve Maler 21 Jul '16

21 Jul '16

*Note that we're now using Kantara line A* (TurboBridge) for the phone line. You may experience trouble getting into it using Skype, in which case try the web interface instead -- though that choice seems incompatible with Safari browsers. Sigh. :) http://kantarainitiative.org/confluence/display/BSC/2016-07+%28July+2016%29… We meet *Thursdays* for 30 minutes at 11am PT / 2pm ET / 7pm UK / 8pm CET . We use Kantara Line A (US +1-805-309-2350, Skype +99051000000481, international options <https://www.turbobridge.com/international.html>, web interface <https://panel.turbobridge.com/webcall/>, more info <https://www.turbobridge.com/join.html>, code 4022737) and http://join.me/findthomas for screen sharing. See the DG calendar <http://kantarainitiative.org/confluence/display/BSC/Calendar> for our full meeting schedule. Agenda: - 10 min: Review Tuesday's discussion briefly if we have substantially different people on the call - Rest of the time: Figure out the broad outlines of use case #1 in light of our new understanding *Eve Maler*ForgeRock Office of the CTO | VP Innovation & Emerging Technology Cell +1 425.345.6756 | Skype: xmlgrrl | Twitter: @xmlgrrl *ForgeRock Summits and UnSummits* are coming to <http://summits.forgerock.com/> *Sydney, London, and Paris!*

1 0

Notes from BSC telecon July 19
by Eve Maler 20 Jul '16

20 Jul '16

http://kantarainitiative.org/confluence/display/BSC/2016-07+%28July+2016%29… Agenda: - 15 min: Sharpen our deliverable ToC/value prop - E.g., focus on transactions/contracts aspects? verticals/sectors? what other constraints to make our goals achievable and valuable?... - Choose a mini-goal for Aug 5 (the one-month mark) - 15 min: Thorsten: present IRM touchpoints and next steps - Homework for Thursday: next steps on patient consent for research (?) use case Attending: Eve, Thorsten, Jim, Marc D, John, Philip (Thomas regrets) *Sharpening our deliverable:* Is our primary audience the Kantara leadership, as John suggests? Kantara is in the business <https://kantarainitiative.org/what-we-do/> of identity innovation and interior. Jim notes that he's discovered the centrality of identity to his purposes, while blockchain is really one of a variety or family of technologies that are potentially relevant to his purposes, namely "moving legal onto GitHub, more or less – making legal processes cheaper and faster and getting them closer to user control and autonomy". Other technologies : IPFS and so on. We seem to have achieved rough consensus about this vision for the scope of our briefing note: We want to focus on use cases that are about "contracting and transacting" in the context of empowering individuals, smaller companies, smaller countries, and communities in a "peer to peer" way with larger companies and countries etc. (not meaning P2P technologies necessarily, though it might do so). "Legal" means a formal statement of relationships, and it could include contracts, permits, consents, and so on. All legal documents increment relationships between some "Persons" (including both human and non-human). *IRM presentation:* Thorsten presented <https://slides.com/wedaslide/irm-bcsc/> some thoughts (of his own) on the IRM principles. We're thinking that capturing various technologies adjacent to blockchain (many of which he has listed here) and presenting an analysis of them in our briefing note would be a valuable idea. Scott (not on the line but on the screenshare) added this link <https://kantarainitiative.org/confluence/download/attachments/69275399/asse…> to a taxonomy of identity types, including human and other. *AI:* Eve: Create a GDoc that would be a briefing note dumping ground for outline ideas (see above re Thorsten comments). *Eve Maler*ForgeRock Office of the CTO | VP Innovation & Emerging Technology Cell +1 425.345.6756 | Skype: xmlgrrl | Twitter: @xmlgrrl *ForgeRock Summits and UnSummits* are coming to <http://summits.forgerock.com/> *Sydney, London, and Paris!*

4 7

Agenda for BSC telecon July 19 (note the switch to Kantara Line A)
by Eve Maler 18 Jul '16

18 Jul '16

Please note that we're now fully in the swing of using the Kantara dial-in infrastructure (TurboBridge). A number of people have have problems using Skype in combination with it; if you have this problem, try the web interface. (I can't get it to work with Safari, myself, but it's awesome with Chrome.) http://kantarainitiative.org/confluence/display/BSC/2016-07+%28July+2016%29… We meet *Tuesdays* for 30 minutes at 7:30am PT / 10:30am ET / 3:30pm UK / 4:30pm CET . We use Kantara Line A (US +1-805-309-2350, Skype +99051000000481, international options <https://www.turbobridge.com/international.html>, web interface <https://panel.turbobridge.com/webcall/>, more info <https://www.turbobridge.com/join.html>, code 4022737) and http://join.me/findthomas for screen sharing. See the DG calendar <http://kantarainitiative.org/confluence/display/BSC/Calendar> for our full meeting schedule. Agenda: - 15 min: Sharpen our deliverable ToC/value prop - E.g., focus on transactions/contracts aspects? verticals/sectors? what other constraints to make our goals achievable and valuable?... - Choose a mini-goal for Aug 5 (the one-month mark) - 15 min: Thorsten: present IRM touchpoints and next steps - Homework for Thursday: next steps on patient consent for research (?) use case *Eve Maler*ForgeRock Office of the CTO | VP Innovation & Emerging Technology Cell +1 425.345.6756 | Skype: xmlgrrl | Twitter: @xmlgrrl *ForgeRock Summits and UnSummits* are coming to <http://summits.forgerock.com/> *Sydney, London, and Paris!*

1 0